I haven’t updated in 5 days, this is due to literally being on a roller coaster!
After we left Dr D’s office I was feeling fine, I continued to monitor my fluids, peeing into a protein shaker every time ! It became apparent that I was retaining a litre of fluid in the first 24 hours! I wont give a day by day account of what has happened but I have realised that hubby was right to get his own way for once (!) by convincing me not to do the transfer. I took a big decline over the weekend, I bloated out, felt exhausted, not hungry and looked and still do pregnant which is ironic!
Dr D called me Friday and advised that my bloods were fine however the fluid retention I had definitely showed mild signs of OHSS also the scan I had of my ovaries showed they were quite enlarged. She advised that if I had any breathing difficulties, pain in arm or shoulder to ring the gynae ward for advice or go to A and E as I was at risk of a pulmonary embolism.
On Saturday night I started getting pains in my arm and a pain in my shoulder, just my luck! I called the ward explained my condition and symptoms and was met with a complete pratt who said “this is gynae not ACY , I will try find a out of hours contact number and call you back but other than that I don’t know what to tell you darling!” , needless to say I am still waiting for that call ! Hubby decided we should go to A and E to be on the safe side. I wont give a blow by blow account of my 6 hours in A and E but some key highlights were: being asked 3 times by different nurses to do a urine sample when I had done one, being asked how many weeks pregnant I was by a nurse due to my bloated stomach, being talked to like a complete knob by the triage nurse, being put in the wrong cubicle which meant the porter could not find me for a chest X-Ray. The on call Dr checked me over and did bloods he said my D-Dimer level was raised which pointed to a blood clot on the lungs , this obviously scared the crap out of me! He gave me a higher dose of ant clotting meds and said to come back monday for a CT scan and go to Ambulatory care. The care I have had in A and E does not even compare to the amazing care I have had in ACU and I can only out that down to the pressures the NHS is under especially A and E.
Sunday I rested but was conscious I needed to move around to keep the blood flowing, hubby was great looking after me, I feel so guilty as again its me and my body letting us down and making him worry.
I went back to the hospital Monday firstly to ACU, I broke down when i saw Nurse L and told her what happened, she wasn’t happy about Nurse Pratt and said she would talk to the ward manager, she advised me to go get my CT and come back later. I went to get my CT in ambulatory care, the Dr put a canula into my vein on my hand and it was awful I came over hot , clammy and had to sit on the floor as nearly passed out! When I went for the CT scan and the injected the saline I screamed as I felt the vein bulge and it was so painful! CT scan came back clear thank goodness so heaven knows why the level was raised. Dr Z saw me after in ACU and said bloods were ok and to come back today for more bloods and a scan. I had started to feel better, managed to eat half a steak and some mac and cheese and had a bit more energy, “this is great ” I said to hubby “I must be over the peak now as feel pretty ok” , or so I thought.
I woke up this morning feeling good with a bit more energy , I slept well. My tummy was still bloated but other than that I was ok. I drove myself to the hospital got bloods , had a coffee and some toast and then went to ACU. When I arrived I spoke to the receptionist and thanked her for everything, I said that the care we have had has been amazing and they have made this traumatic time a bit easier, nothing has been too much, they have fitted me in, called me daily and given me a hugs when needed. She was so grateful and gave me a hug and said that it means so much to hear something so nice. Dr Z scanned me and I told her the same, she said I had made her day. She said my ovaries were still enlarged but had shrank a fraction and that all the fluid in the womb area had gone so she thought this could be the start of the end .
I got home and started to feel unwell, shaky, hot achy! Oh great here we go again! I had a lay down and Dr D the deliverer of doom called! She said my bloods have shown the OHSS is worsening and I am in for a rubbish couple of days, she said that it will peak by thursday and I should be better by the weekend. I did not think I could feel any worse! She said I was to call in the morning with my fluid stats and symptoms and she will decide if she needs to see me. I have felt vile for most of the day but have perked up a bit so thought I would take the opportunity to write this before I crash again.
Who knows what tomorrow brings but the lesson of the week is always listen to your husband at least once in your marriage 🙂
Searching for a positive 